We are still in the PICU and there hasn't been any talk of moving us yet. They have had a hard time getting her pain under control since her morphine dose is so small. She has been on Valium to control the back/shoulder spasms. The infectious doc was just here and no bacteria has grown yet. They tested her spinal fluid in the OR and there are white blood cells in her spinal fluid. She's allergic to the catch all medicine they want to put her on. Without bacteria growth, it's hard to know what you are fighting. She's on an antibiotic now but it doesn't get into the spinal fluid well. Hopefully something will grow so they know what they are fighting. The doctor said at least another day here.
She definitely seems to be in better spirits today. She's yelling at her body already and was in tears when I told her that her pump was taken out. She tells me several times a day that she wants her pump back in. It makes such a difference in her life and everything that she does.
She should start sitting up some today. We are still waiting on the neurosurgeon to come in. Our doctor isn't here today but his partner is. Our doctor will call to check on Hope too, he always does.
So far today is going much better than yesterday. I think the oral Baclofen is finally kicking in and her morphine dose was increased. Between that and the Valium, it is keeping her pretty calm. She is still completely awake. Blows my mind. I would be sleeping or watching unicorns flying around the room!
If I have to be in the hospital, I love it when it's a holiday. The halls and waiting rooms are quiet and there's no lines in the cafeteria.
Thank you everyone for your support and prayers!
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