Botox went well! He injected her calves into the toe flexors and heel cords. She received a third of a dose just to make sure there were no reactions. She said it is helping already. Poor Hope is more concerned about the iv spot than her legs. Mom knows the right medicine though, french fries and a band aid! If only life was so simple! She had everyone in pre op and post op laughing as usual. She woke up out of anesthesia (3 minutes after being taken out) and said "I need to wake up more." That's my Hope!
Things are well! Keeping Hope on track with school and school is still kicking my butt. Midterm and quiz on Monday and than another big quiz on Tuesday. Hope has an x-ray on Wed to make sure her toe healed okay. She has follow up on Botox in 4 weeks with both doctors. Here's hoping it has longer lasting results this time!
Thank you everyone for your continued support and prayers!
Friday, February 26, 2010
Wednesday, February 17, 2010
No cast, no surgery!
Turns out she fractured her big toe in 2 spots. They are incomplete fractures so they are not serious. She now has a specialized shoe that she has to wear for 3 weeks. No running or jumping. She's not happy about that. She can walk though. She has to walk slowly and that doesn't make her happy either. Pretty sure Botox is still happening but will know for sure when the nurse calls back.
I received my final grade in English and Communications today. 95% That was based on bad grading too. Here's hoping I make it through psych and the muscles of the body. There's a lot of them and they are not in English!
Tonight I took part in an ASU research project. They are working on a project called SPEAK and their goal is to make disabled services/programs readily and effectively available to parents of disabled children. If it works it will be amazing! I'm happy I could be a part of it.
That's everything new since yesterday! Thank you everyone for your support!
I received my final grade in English and Communications today. 95% That was based on bad grading too. Here's hoping I make it through psych and the muscles of the body. There's a lot of them and they are not in English!
Tonight I took part in an ASU research project. They are working on a project called SPEAK and their goal is to make disabled services/programs readily and effectively available to parents of disabled children. If it works it will be amazing! I'm happy I could be a part of it.
That's everything new since yesterday! Thank you everyone for your support!
Sunday, February 14, 2010
Wheelchair bound
Well, Hope fractured her big toe on Friday. She tripped and hit it against a hard piece of furniture. She took a little chunk out of her metatarsal. I iced it and she complained about it some but no more crying or anything. It looked fine Friday night. Saturday morning she was still complaining and rightfully so. It was bruised and swollen. After 3 hours at Urgent Care she came home with a boot on and her toes taped. She has such a high pain tolerance. She is not walking but I am letting her bare weight to stand in the bathroom. She is zooming her wheelchair all over the house. It's interesting with 4 little kids running around! She's doing awesome though. We go see a new ortho this week. Hopefully she will be up and running in no time!
Friday, February 12, 2010
Amazing little girl
Hope never stops amazing me! She has been very curious as to why she can't walk like mom and can't wait to be big so she can walk like mom. I have never thought to tell her that she has cerebral palsy or why she has it. I have just taught her how to cope with it and people's questions about it. It didn't occur that I forgot this major detail until a therapist told her that she has CP a week ago. Tonight we talked about CP and why she has it. I think she understands as well as a 7 year old can. We also talked about me not having any more kids because Hope is all I need. She seemed okay with it. Maybe because I was batting her face with a stuffed animal as I said it! She's my rock and is so resilient.
Hope decided tonight that she doesn't want to do track again this year. I am not the least bit disappointed. I look forward to sleeping in Saturday mornings! Of course I just bought her a track walker. Maybe she will want to try it again when she gets a little older. She wants to try the bowling league. Her OT is making her earn money right now to save for a bowling day (She's being a terd for the PT's and this is to help make her behave for them). If she likes it, I will have to contact AZDS (AZ disabled sports) about getting her on the team. Hopefully she will be able to join soccer when it starts again too. That will be a while though. She still had an open wound when they started the season.
Hope is doing awesome in school. The new meds are still working great. We now have a sleeping that works too! She is retaining information and most of the time actually wants to do school work. She is writing cards now and spelling out words. I received a "don't like you now" card a week ago that she spelled out all on her own. Yesterday she made a huge card with her and me on it and inside the little speaking bubbles were "how are you" and "ok". Well, the letters were flipped some but she had all of them there and I knew what she was saying. She is reading to herself every night! Reading has been the biggest struggle since day one. She is doing so awesome! Her teacher just enrolled her in a head sprout program that should help her even more. She says it's fun. Have been on to play with it yet.
I passed Medical Terminology! I received 106% on my final and 101% in the class! Wish I could say the same for Anatomy! I bought a skeleton and flash cards to have at home. Hopefully that will help. I'm staying afloat but man it's rough. Still love it though!
Hopes Botox is still on for the 26th. Here's hoping it works!
All in all, we are doing well! Thank you everyone for your continued support!
Hope decided tonight that she doesn't want to do track again this year. I am not the least bit disappointed. I look forward to sleeping in Saturday mornings! Of course I just bought her a track walker. Maybe she will want to try it again when she gets a little older. She wants to try the bowling league. Her OT is making her earn money right now to save for a bowling day (She's being a terd for the PT's and this is to help make her behave for them). If she likes it, I will have to contact AZDS (AZ disabled sports) about getting her on the team. Hopefully she will be able to join soccer when it starts again too. That will be a while though. She still had an open wound when they started the season.
Hope is doing awesome in school. The new meds are still working great. We now have a sleeping that works too! She is retaining information and most of the time actually wants to do school work. She is writing cards now and spelling out words. I received a "don't like you now" card a week ago that she spelled out all on her own. Yesterday she made a huge card with her and me on it and inside the little speaking bubbles were "how are you" and "ok". Well, the letters were flipped some but she had all of them there and I knew what she was saying. She is reading to herself every night! Reading has been the biggest struggle since day one. She is doing so awesome! Her teacher just enrolled her in a head sprout program that should help her even more. She says it's fun. Have been on to play with it yet.
I passed Medical Terminology! I received 106% on my final and 101% in the class! Wish I could say the same for Anatomy! I bought a skeleton and flash cards to have at home. Hopefully that will help. I'm staying afloat but man it's rough. Still love it though!
Hopes Botox is still on for the 26th. Here's hoping it works!
All in all, we are doing well! Thank you everyone for your continued support!
Subscribe to:
Comments (Atom)