Sunday, July 5, 2009

Regression

The time is now 1:19am. Three attempts and an hour later and we have a new IV. She has a blood draw at 5am. Hopefully this new IV will stay working until then. She is receiving 5 different medicines through her IV and 4 of them are very rough medicines. With such small veins and massive spactisity, IV's are hard to get and keep. During morning rounds the nurses will be asking about a pic line and the IV team will be called. She is a very good candidate for a pic line. She can come home on that as well. The new IV is mid arm so it doesn't disturb her game playing at all. Priorities!!
Her back is leaking spinal fluid so she is back down to a 10 degree angle. If it leaks more, it will be reinforced and placed flat until the doctor decides if more aggressive action is needed. No headaches but she seldom complains of them. The muscle spasms are the only thing that really puts her in tears, well that and the 5 inch incision on the tummy .
Due to recent activity I am not sure if she will go to the floor tomorrow. I should know a lot more after morning rounds and after the infection dr comes in.
Now to coax her to sleep so I can get some sleep. Medicines run all night long and some have to be taken orally. Makes for a very long day and night.
Thank you everyone for the love, support and prayers!!

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