I checked Hopes pump this morning before leaving the house and she was leaking a generous amount. Called the doctor and was told to come in, no food or drink. He removed the steri strips in the office and it was a very nasty sight. The incision is normally 1/4" thick, the pump stretched it about an inch and a half apart. There was a very thin layer of skin holding the pump in. It was draining from about 4 separate spots along the incision and was very discolored. We were straight admitted to the PICU at Phoenix Children's (of course). Surgery happened at 5:30 and she is playing a video game now. The pump looked "very bad" and was not salvagible. The white cell count was so high they couldn't tell what bacteria was in the culture. The entire pump and catheter was removed. Which means her 5" tummy scar and back scar were reopened. Not sure how big the back is. It runs about 6" long but not all of that would be opened. Of course, she has the first infected pump the doctor has ever seen and he has placed over 100 of them. That's my kid! She is flat for 48 hours in the hospital and then slowly inclined to help prevent a CSF (spinal Fluid) leak. Hopefully we will be out of here on Sunday. Infectious Control will be handling her antibiotics and duration. There is talk of 2 weeks of iv antibiotics. The biggest concern with having an infected pump, it goes directly into the spinal fluid which goes directly to the brain. This was caught early enough so she should be in the clear.
We have a long road ahead of us but so far so good. She is breathing well and her heart rate is good so it shouldn't be a repeat of last time. I will update this everyday if not twice a day while we are in here. I'm exhausted so hopefully this made sense. My cell reception is hit and miss but I do receive my emails in here and you can call the main line to get to our room, where ever we are. 602-546-1000.
Thank you everyone for your support, love and prayers!
No comments:
Post a Comment