Friday, April 22, 2011
Long Over due!
I apologize for not getting this done sooner! Things have been really crazy! Hope had Myobloc injections just before the new year. Nightmare!!! She had so many awful side effects from it including pneumonia. Needless to say we wont be doing that again. We are still waiting to hear if her soleus (inner calf muscle) is permanently paralyzed. Despite all of that she is doing well. Her legs are extremely tight every morning but loosen up throughout the day. She is still walking with her dog at school and it is amazing to see!! She is now streamlined for all of her classes!! She is in with her typical peers all day long! So proud of her! She loves reading now and use to hate it!
I just finished my last semester in the class room. I have a week off and then start fieldwork for 4 months. I work full time and pay to work. Fun times! It will be a wonderful learning experience. I am with a pediatric home health agency first and then in a hospital. Very exciting! I had 5 classes this last semester and ended with a 93, 96, 98, 99 and 100!!! Woot woot!!
May 7th is Hope and Meg's graduation followed by Desert Heat. Hope's track competition Saturday night and then Sunday early morning is Hope's archery competition! LONG weekend!! Can't wait until it is over! Hope has been nailing bullseyes at 10M and having some difficulties at 15M. She really loves it though! It breaks my heart yet makes me so proud when she gets out of her track chair. She goes back to track every week enthusiastic and then gets out of her chair and is screaming with bad muscle spasms. I'm hoping to find a way to get her in a hand cycle. The positioning isn't quite as bad but not sure her legs will let her do it. Not to mention its a lot of money I don't have. I'll find a way to make it work though.
I will be sure to post pictures of their graduation and competitions as soon as I can. You probably won't hear from me in the next 4 months unless something drastic happens though. Thank you all for your continued support and love! Hope all is well with you and yours!
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