Monday, April 25, 2011

Easter & Ortho


As you can see Meg had dun helping find Easter eggs too! I found a keyboard on Craigslist for Hope and she is in love. I wish it came with headphones though!! Not nice waking up to it.
We went to have her casted for new braces and have her current braces fixed today. She was casted. Waiting for approval from Shriner's to pay for a new complex pair. Her current braces could not be adjusted. Her legs have gotten so tight that her feet are rubbing against them and starting to cause a pressure sore. She is not wearing braces until the new ones are ready. I predict a sprain or fracture again in the near future. (Just had one less than 3 months ago!) They are making new braces that are hinged in her ankles and will allow some ankle movement. Her knees are so tight she is not able to do a long sit or put her heel on the ground while she is walking. She sleeps on her tummy and her heels touch her butt. These braces won't make her heel hit the floor but should allow her to find a center of balance. Her legs have to be crouched some for that to happen. Chances of her tendons stretching to a normal length are unlikely. Since I have exhausted every surgical option and medical option out there, we are back to good old fashion stretching everyday. Which we do anyways but now she will be on a strict schedule that all of her providers will have to take part in while I am on field work. I'm breaking out the sewing machine tomorrow and making a hot pack too. Should be interesting! I'm not the Martha Stewart type! She will have to get back in her stander no matter how much she whines too. The down side, she learned how to break out of it! I'm thinking I might need to invest in some longer bungee cords and duct tape! I will have to take time off fieldwork to go back for the fitting of her new braces. The owner is amazing and said we could do it on a Friday afternoon when I meet with the owner of the company so I won't be missing any actual treatment time. Hopefully the owner will be okay with that! Even with Hope tightening up so bad, the fact that she has all of these things against her (Cerebral Palsy, Ataxia & Dystonia) it is a miracle she is still able to walk and not a "pretzel" as the orthotist put it.
Thank you all for your continued support and prayers! They are truly appreciated!

No comments:

Post a Comment