Last Friday Hope had her procedures done finally! She had a 1 bang MRI done on her brain. The neurosurgon texted me to let me know everything looked great (we didn't get results immediately). While she was there she had a lumbar puncture done to check her pressure levels. Her levels are still high but on the lower end of high (Hydrocephalus). Since she is not having any seizures, a shunt is not needed at this time. He feels this pressure would not be causing her head aches or other symptoms. She also had Myobloc injections. They are similar to Botox but a different strain. She was really tight a couple days after the injections. I thought it was from the injections but she has eaten the entire freezer tonight and slept in until 10am (NEVER happens!) so I think she is on another growth spurt. The most common side effect with Myobloc is Dysphagia. Meaning her mouth and throat muscles become weak. She had a horrible cough and sounded like she was aspirating (Liquids go into lungs instead of stomach). I was terrified of pneumonia but she is sounding a lot better today. Some of her speech is still a little slurred as well. The part that scares me, she was given a small dose to ensure no allergic reaction. I have a feeling the next injection might be the last. For tonight, her lower legs are nice and loose! She was even standing to play her dance game on the Wii without her braces on!
Overall, the new year is starting well. She goes back to school tomorrow and I went back today. I ended last quarter with 2 A's and a B. We have a new program director which I think is a good thing. We have a bunch of speakers and field trips scheduled. It would be nice to see some of the real world before we are thrown into it in 4 months! Yes, in 4 months I start fieldwork! My goal for 2011 is to graduate! Can't wait even though I will miss all of my new friends sooo much!
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