Neuro update

Sorry it has been so long. We have had hospitalizations in the family and then the family was hit by the sickness. It's been a long month! Hope and I are finishing up school over the next two weeks and are very excited about Christmas break! My only 2 week break from school and Hope and I might actually get to spend some time together!
Hope finally made it to the neurologist today. She is getting Botox injections from the neurosurgeon again in a couple weeks. We are still waiting for an exact date and which strain they are trying. She had an allergic reaction last time so they want to try a new kind this time but it is a much scarier form of Botox. We go back to the neurologist in 3 months when I will try a new muscle relaxant medicine on her. The doctor doesn't hold much hope. She has so many weird reactions and it will sedate her and make her regress in school. It will be a short term help if it works. There is nothing more they can do for her except deep brain stimulation. I am pretty sure I am against this option. They would implant electrodes into Hope's brain and place a little computer device in her stomach that would send electrical impulses into her brain. There is a lot of controversy over it but has had some positive results. If I did choose to do it at this point I would have to take her to Texas or Washington to have it done and pay cash. It's very hard when you realize you have run out of options to help your kid.
Hope is doing well in school and in life. She is still growing like a weed and maturing everyday. Knock on wood we haven't had any major injuries in a while and she is wearing her braces like she is suppose to. Her and Meg are ambulating the school classroom nicely as well. There are still a few issues to work out but Meg is working on opening our sliding glass doors and turning on and off the bathroom light. Hope is still afraid of going to the bathroom alone! Maybe someday she will outgrow that!
I hope everyone is well! I will post again after Botox of Christmas, whichever comes first. Happy holiday and thank you for your continued support!