Crops Of Luv

I received an email last night from an amazing Non-Profit. Crops of Luv makes scrapbooks for Make A Wish Families. They figure it costs $200-$300 to make each scrap book and they are making one for us for free. I download all of the photos to a website and give them our memorabilia, in 6 weeks, I have a custom made scrapbook! I was hoping to someday have the finances and time to do it, now I don't have to worry about it! AMAZING!
3 weeks until school starts for Hope. So much to do so little time! Her and Meg are doing a lot better with walking together. Hopefully Meg can keep it together in the classroom! Time will tell. We have an IEP the Friday before school starts. Anything I need to provide for accommodations will need to be done quickly. I'm working on her medical records now so they are on a necklace when she goes back.
Her Orthopedic Surgeon appointment is the day after her birthday and her Neurosurgeon appointment for Botox follow up is on the 30th. The Botox lasted longer this time but with the allergic reaction, not sure what will happen. The last 2 weeks of this month will be crazy! Well, crazier than normal! It will be nice to have her back in school. I will have time to study and actually go grocery shopping if I need to rather than waiting for a respite or Hab worker to be here.
We received a free invitation to view the fireworks from the Disability Empowerment Center Rooftop. From 6-8 they had a barbecue and then a live band from 8-10 and fireworks from 9-10. It was perfect. We were able to see a couple of different fireworks displays from the rooftop and we were right next to the Tempe Town Lake fireworks. We left before the fireworks ended because someone was tired. I figured we would beat all of the traffic. WRONG! It was horrible. Not sure what we will do next year but it won't involve Tempe or any surrounding areas! Her auditory sensory issues kicked in big in the car. We drove close to the fireworks launching station and it was pretty loud. Of course I had put her headphones away already. Her and Meg both did really well before the car ride home. This is her waiting for the fireworks while "listening" to the band.

We sat right in front on the misters and we both stayed nice and cool. A little wet, but not hot!
I still have not replaced my camera. I will try to borrow one from my family when we do her birthDAY trip and party. She's excited to be turning 8. We are both getting so old! She is still growing like a weed. Can't keep up! Every time I turn around I am adjust walker and stander heights. Crazy!
I'll write more after her appointment unless something exciting happens before than! Thank you everyone for your continued support and prayers!