Hope is on her last week of school! Yeah! She has done awesome this year! Her ADHD meds make such a big difference in her. Not to mention it makes the attitude and memory problems subside too! Still not sure what I am going to do to keep her entertained over the summer!
Saturday night I had an amazing birthday party! I even rode a mechanical bull! That was a sight! Apparently I have a talent for walking off the bull when I am done rather than face planting! I came home Sunday and took Hope to Urgent Care. She sprained her ankle, again. I was a little freaked out. The dr said he saw a cyst like structure on her bone and would call the following day if I should be worried about it. (After a specialist looked at it) No call so I guess we are good!
Meanwhile, I rearranged and am working on getting a pub height counter that is wide enough for her stander to fit under. Her legs are really tight in the mornings and she is unable to walk. Since she has had the sprained ankle, she is cruising the whole house in her chair. She has a certain freedom and happiness in it. Needless to say we are keeping things picked up as best as possible for her to cruise around (and do donuts where ever possible!). We received her new orthotics on Monday, so when she can bare weight again she will use them. I bought some gel pad things to go on her knees so she stops rubbing them raw. $66 for tiny little gel sleeves! Everything in the disabled community is a rip off! Her feet have gotten really bad too (skin integrity issues). I'm having a hard time keeping up with everything. Don't know why!
I don't know how parents know the balance between pushing your kid to walk and just giving up, for lack of a better term. I'm not giving up yet but don't think I am pushing it as much.
I go to learn about a possible job opportunity tomorrow. Hopefully it can help take some of the strain off my family. My poor college life is taking a toll!
My brain is beyond fried, hard test tomorrow. I hope this made sense!
It has been a rough couple of weeks for our family. There are always issues going on behind the scenes, but these past couple weeks have been beyond overwhelming.
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