We went to spacticity clinic today. Dr Kwaznica suggested botox again. The last time we tried was 2 years ago and it only lasted 2 weeks. It is meant to last minimum of 2 months. Hope's toe flexors are really tight which makes her toes curl under. These muscles are really deep in the foot. Her heel cords are also really tight. Dr. Shafron will be doing the procedure. He will inject a full dose of botox into the heel cords to, in theory, loosen them so we can stretch them and help them grow. Last time they injected her quads. Dr Kwaznica feels her quads are okay now and it's a movement disorder and her tight heels that make her crouch while walking. Botox will be a one day in the hospital procedure. I'm hoping we can get it done after Disney World and before Christmas. We'll see. The nurse should be calling next week to set it up.
Now that I just bought her Toe Off braces, CRS is now covering them. Figures! Hope has had them less than a month and already has chunks out of them and cracks from slamming on her knees. That's my girl!
All in all we are well. So far we have remained healthy except for fire induced bronchitis after camp. Hope is loving the fact that she can get wet. Very sad that she missed the water slide again though.
Thank you everyone for your continued support and prayers!
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