Hope no longer has restrictions! Her bandages and binder come off today! I will be calling to schedule her surgery today. Since I have a wedding, I'm being kidnapped for a day, and some other events this month, I am hoping to schedule for June 1st. We will hopefully only have a 2 day stay and she won't have to lay flat. If he opens up her stomach and the tube isn't draining correctly, he will have to open up her back again which will mean a 4 day stay. That shouldn't happen though.
If the pump is put in and fluid starts to build she will go back in for surgery immediately. He will open up a bigger spot on her back, expose the bone, drill off a little bit of her vertebrae and attach the catheter to the bone. Hopefully with all of these measures, he won't have to drill into her head or place a shunt.
She is still having problems with bumps on her legs. We aren't able to provide all of the therapy techniques that we would like because of them. She was diagnosed with Mellescum about 2 years ago. I'm wondering if that is what it really is. They go away for a couple of months and then come back for a couple of months. They are driving me and her crazy. Right now she has a big one on her knee so she can't even crawl. I have no clue what else to do.
We go see the orthotist Thursday for braces and Friday is Shriners Clinic. I will post again on Friday and I may have a positive date for surgery by then too.
Best wishes to everyone!!
No comments:
Post a Comment