All the toes are wiggling!! We had a late start and then complications in the OR but we are done now! It took 3 tries to get the catheter where it belonged. The incision on her back was reopened and expanded a little. The catheter was fed through that opening up her back along the spine and stopped between her shoulder blades. Then it was fed around her side to her abdomen on the left side (opposite last pump). He coiled some extra catheter inside hoping to attaching the pump later. There's about a two inch incision on the tummy where the catheter ends. He also crimped the end at the stomach hoping to keep spinal fluid in. We will know in 2-3 months if this is successful.
We are hoping for success. We talked this morning, in case it fails, he can go in and grind away part of the bone in her spine and attach the cathater to the bone. That would be the next option before placing a shunt. It is a pretty invasive surgery though.
We are in the PICU tonight and will move to the neuro unit tomorrow. I am in the most comfortable glider I have ever been in!! She has to lay flat for 48 hours and then a slow incline. We hope to be out of here by Thursday but may be Friday. She's not happy about having to use a diaper. I think that is the biggest challenge at the moment. She ordered food and is drinking Sprite. All signs point to the positive!
I'll keep this updated. To all of my Facebook friends, so far I haven't been able to get on. =- ( I think the hospital has a block on it. I'll keep trying.
If anyone wants to call, my cell is hit and miss with reception. Texts have been coming through okay so far. The number to the hospital is 602-546-1000 and you can just ask for her room. Right now we are in PICU 48. That will change sometime tomorrow. We are at Phoenix Children's Hospital. If anyone is/was planning on visiting, no one under the age of 12 is allowed in and you can't have any signs of being sick or you will be told to walk back out the door.
Thank you everyone for your thoughts and prayers! Now please pray for obedience from my daughter!! Ha!
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